Dear Society: It’s Us, the Siblings

Incredible insights into the life of siblings of children diagnosed with Autism.

siblingsofautistickids's avatarA Mile in Blue Shoes

My 7-year-old brother Nate slept over at mine and my husband’s house last Friday. We took him to his first baseball game that night, where he ate a pretzel; caught a baseball; cuddled with the stuffed animal he had brought; asked questions constantly; ate a snow cone; and watched fireworks with a dropped jaw and a sparkle in his eyes like a 7-year-old should.

I have two brothers under the age of 10. The older of the two, JD, is 9 years old and has Classic Autism. The younger of the two, Nate, (the one about whom this post is written), does not have Autism, but lives with it on a daily basis nonetheless.

The night of the baseball game, we got home around 10:30 PM. Nate and my husband played video games for a while before Nate said he was tired and wanted to go to sleep. As I was…

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Hungers of the Heart by Richard G. Watts (excerpts)

Found this worth rereading this morning.

Eileen's avatarLaughter: Carbonated Grace

Hungers of the heart: to find a personal reason for being here, a purpose worth living for; hunger to shed our loneliness, to have honest relationships with one another; for a society that is more peaceable and fair; and a hunger to feel at home in a cosmos that we so briefly inhabit, a hunger that many people call God.
Regarding the words Spiritual and Religious, you might think of it this way: Spirituality is personal religion and religion is social spirituality. Both words refer to the human need to find our place in the overall scheme of things.
However, in virtually every field of human endeavor, new discoveries are praised. …In no other area of life is denial of progress held up as a virtue, except religion.
Carl Sagan was right: “Skeptical scrutiny is the means, in both science and religion, by which deep insights can be winnowed from…

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My Sister-in-Law Was a Human Cannonball or Where Do You Park Your Elephants?

Eileen's avatarLaughter: Carbonated Grace

Duina Preparing for Flight

Many years ago, my husband’s father was Potentate of the Almenah Shrine Temple in Nashville, Tennessee. At some point, over sixty years ago, he initiated bringing a Shrine Circus to Nashville.  Little did he know that it was also bringing a future daughter-in-law.

A high-light of the circus were the  Flying Zacchinis.  The Zacchinis were a circus family from Italy.  They performed on the trapeze, the trampoline, and their own invention, the Flying Cannonball.  Two beautiful young sisters were propelled from a giant cannon across the arena into a net.  This was done with much suspense and fanfare and a loud explosive sound, as they literally came flying out. (Except once, when the sound effects failed and there was just a ‘ f-f-f-f-t‘ as they were shot out.)  Sometimes they were in double cannons and shot simultaneously.  One of the sisters, Duina, was…

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What I Used to Believe

Yup! Still haven’t seen the bottoms of anyone’s feet ascending yet.

Eileen's avatarLaughter: Carbonated Grace

I used to believe that good people were perfectly good. Or at the very least, they were headed to it, gathering speed as they aged.
Now, I know a whole lot of nice dead people who never got anywhere near perfect.
Even worse, now that I’m old, I seem to be getting less good each year, or maybe just more obviously not so great.
I’m beginning to think it’s a little like the Velveteen Rabbit story. Our pretty and soft coverings wear thin from the lessons about loving that we get from bumping up against other people.
We begin to look a lot less good or at least a more spotty good, than when we had the energy to fake it,
Freedom has its price and becoming free to be real is expensive.
But when we realize that we can see the door from here, we finally get it:
Only…

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The Wounded Prodigal Within Us

From Henri Nouwen’s  A Spirituality of Living

“We all have wounds…….It is a feeling of loneliness that lurks behind our successes, a feeling of uselessness that hides under all the praise we receive…….that makes us grab onto people and expect from them an affection and love they cannot give. If we want other people to give us something that only God can give, we become a heavy burden.”

Nouwen goes on to say: “I love Rembrandt’s painting The Return of the Prodigal Son. The father holds his child, touches his child, and says, ‘You are my beloved. I’m not going to ask you any questions. Wherever you have gone, whatever you have done, and whatever people say about you, you’re my beloved. You can come home to me whose name is Compassion, whose name is Love.’

Nouwen says, “ If we keep that in mind, we can deal with an enormous amount of success as well as an enormous amount of failure without losing our identity, because our identity is that we are the beloved. Long before our father and mother, our brothers and sisters, our teachers, our church or anyone else touched us in a loving or wounding way —— long before we were rejected by some person or praised by someone else-that voice was there. ‘I have loved you with an everlasting love.’

That love was there before we were born and will be there after we die. A life of fifty, sixty, seventy, or a hundred years is just a little moment in which we have been given time to say, ‘Yes, I love you too.’ ”

Henri Nouwen was a priest theologian/author who toward his later years went to live and minister in a settlement for the mentally challenged.
This quote is from a tiny gem of a book put together from insights from his other books, called A Spirituality of Living.

My overachieving underachiever.

Can so relate to this. I love the sentence: I know you are not behind (at school), you’re right where you should be on your own little adventure through life! ….you make me proud and teach me to be a better Mother every single day.

CherTrudy's avatarCherTrudy

You’re NOT an underachiever because academically you’re not hitting all your milestones, you’re not an underachiever because your abilities aren’t in that of maths and writing. You are an achiever, you’re my achiever! And don’t you ever let anyone tell you otherwise!

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Victim Mentality

Being a victim is not a choice, but remaining a victim emotionally and mentally is.
Some people seem to get addicted to a victim self-image. It becomes their identity.  But a victim mentality not only excuses us from taking responsibility for ourselves, it gives all our power away.

If you listen to someone who has fallen into this trap, you can hear the suppressed anger. Women particularly, but to some extent most of us, are convinced that anger is bad, even sinful.
But anger recognized and claimed can be ours to control, to express, and to turn into something creative and empowering.

To cling to a victim mentality is to remain a helpless child.  While reasonable anger channeled in practical ways can change injustice for ourselves and others. Anger’s power and the responsibility and accountability that go with it can be our doorway to maturity and effectiveness. The change starts with recognizing and claiming our anger. Then, we can begin to work toward finding our own process to not only deal with our anger, but to turn it into a power for good.

I’m hoping that some of you reading this will comment and share things that can help others experience this transition and even impact others.

Bibliophile humor

Delightful!!

A Spot Unpainted

There’s an artist that always left one small spot unpainted. The idea was that nothing is perfect. There was a time in the total silence of a new fallen snow that I stood alone on a hill at night looking at millions of stars. I felt incredibly tiny and insignificant in the face of such grandeur and enormity. I could literally feel myself shrinking. But suddenly I felt at one with all of it. Like a tiny anonymous dot that fills in an empty space in a painting, I not only had a right to be here, but was needed for completion, to make the universe whole. We are all tiny, but crucial parts of the whole. But the whole is greater than the sum of the parts.

Death and resurrection, sorrow and joy, mourning and dancing, loss and hope, the reality that all of these seeming opposites are inseparable is the paradox at the heart of life. The cross as the symbol of Christianity symbolizes this truth. Buddhism says the same thing in slightly different language. There is truth and wisdom in Buddhism, but with Christ there is also the dimension of relationship. And relationship takes you where you are and walks hand in hand with you to where you are being called. I experience the beauty and power and truth of God in the universe. But God is way bigger and more complex than I can comprehend. I sense the presence of God within me some of the time, but other times I need that human expression of the love and power of God, Jesus, to relate to, to show me how to love, and to hold my hand when I crumble under pressure

There are goodies and baddies to everything in life. If you are a mom with another career, you are beset by guilt over whether you have not been a good enough mother, particularly when your children as adults turn out to be human with all that goes with that. If you are a stay at home mom focused predominantly on your children, when inevitably they turn out to be human as adults, if you have not let go of them as your reason for being, their human problems and mistakes become about your ego, not their or anyone else’s pain. Though not true for everyone, it took me until midlife to recognize how very flawed I was and how silly it was to expect my progeny, no matter how bright, funny, talented and kind, to be perfect. None of us gets or passes down all the good genes. None of us, even with what we consider our best traits, gets it perfectly right for raising another human being with a different mix of genes and traits. That is one of the less appealing realities of life. Luckily, none of us is finished yet. And I actually think the younger generations are facing some of these unpleasant realities earlier in their lives than we did in ours. So, in spite of the discouraging state of humanity, there are signs that we are still able to evolve once we realize we need to.

I used to get my feelings hurt not only easily, but deeply enough that I cut people out of my life. It came from an unrecognized need to be perfect and anything said that implied to me that I wasn’t, devastated me. Being able to see the door because of being 79 helps a lot. I figure at this point the only one I have to worry about is God and He knew I was a difficult person before I did. It also helps, when people who tend to be insensitive hurt me, to look for something redeeming about them. I’ve found this way I can care and even make sacrifices for people I find difficult to like (including myself). 

Henri Nouwen in his A Spirituality of Living writes that possibly the main human suffering comes from loneliness.  So, it is important to develop our capacity for solitude where we can experience the love of God.  Other wise we are going to expect someone to give us that perfect, unconditional love.  They cannot.  Often this means a painfully temporary quality in our relationships.  Instead of long lasting involvements that grow stronger over time, we may experience separations and growing despair about finding someone who can meet our deepest desires for intimacy. Developing the capacity for solitude is the groundwork for creating community and becoming capable of commitment in our relationships.

 

Freedom of Speech and Freedom from Listening on Face Book

Regarding homosexuality: I want to free any friends and family to un-friend me that are offended by gay marriage. Homosexuality runs in my family at least all the way back to my great-great aunt who was brilliant and courageous enough to manage to become a pediatrician in the 1800’s and loving enough to start a clinic for the poor, but was never mentioned in our family because she lived with the same woman all her life. I think the purpose of life, including the Christian life, is to learn to love unconditionally and to serve others. The best, though not the only, school for learning unconditional love is marriage  (But NOT abusive marriages).

Living with another person and learning to truly love that person, even someone of the same gender, while also serving others meets my criteria for spirituality and I believe with all my heart that it meets God’s. I respect others’ opinions and do not want to offend their sensibilities. I will not be hurt by your choosing not to see my posts.

As to politics: I think any organization, corporate or governmental that gets so big that it is no longer able to be concerned for the individual, even the least of our brethren, will become demonic. There are corporations like AT&T, Banking Conglomerates, Insurance Companies, Oil companies and it’s beginning to look like, Obama Care,that are simply too big. I think the mildest of us has wanted to do physical harm to someone at times when we have had to deal with a bureaucracy of robots. The problem is that when a multinational corporation becomes more powerful than the government and richer than many nations, there are no checks and balances. Very few human beings can make a billion dollars and not fall into the trap of thinking they are above the law (in other words,  equal to God). The government isn’t the only entity that has become too big and powerful. The major problem that needs solving includes, but isn’t limited to the size and complexity of the government.

Regarding the role of religion: Christianity is about using our gifts for others, not about power over others.

I have no answers, but as much heartbreak as irresponsible sex can cause through unwanted and abused children, abortions, or deadly viruses that infect innocent unborn babies, greed is what is our worst enemy. Greed infects CEO’s, politicians, people on welfare, and middle class people who teach their children from childhood to feel entitled to everything anyone else has without any effort of their own. The external trappings of Christianity, such as public prayer, are not what is at the core of our faith. It is love and the willingness to not only lay down our lives for others, but as the very minimum, to be kind. I both respect and struggle with both polarities of political opinion, but think that is the exact problem, polarities. We push each other into extremes instead of working together to find the right balance between personal responsibility and government assistance, corporate or government growth and the value and rights of the individual, personal or corporate freedom and accountability. And finally, the reality is that the viciousness and misinformation used by both ends of the political spectrum do not help or change anyone.

I love and care about all my face book family and friends, but I simply cannot support or be a conduit for the kind of political expression many are choosing to use today. I will not un-follow you, because if I am not willing to print and publicize either the style or the content of your communications, you shouldn’t have to do that for me either. I will happily accept your un-friending me and will also feel free to do the same. I think this is an act of lovingkindness.